Everything useful for a daily headache, in one place.

Print and bring

Free, no sign-up. Open one, then use Print → Save as PDF to keep a copy or send it to your doctor. All fit A4 and US Letter.

Check and track

Read on ndph.org

NDPH-specific, elsewhere

NDPH is rare, so good information about it is scattered. These are the pages worth reading.

• ICHD-3 4.10: the official criteriaEN

  The International Headache Society’s definition, with the notes doctors use to apply it.

• American Migraine Foundation: NDPHEN

  A plain-language overview by a headache specialist (Deborah Tepper, MD).

• Migraine Canada: NDPHEN

  Diagnosis, tests, treatment and an honest take on living well when no treatment is proven.

• Cleveland Clinic: NDPHEN

  Symptoms, causes and treatment from a large US hospital.

• NDPH Research FoundationEN

  A volunteer-run US non-profit that raises money for NDPH research and shares news about studies.

• NDPHawareEN

  A patient-run community with support groups and a newsletter. Some of its content discusses treatments that haven’t been tested in trials; talk to your doctor before trying anything.

Find a headache specialist

NDPH is often best managed by a neurologist with a special interest in headache. These directories list them. In most public health systems you will need a referral from your family doctor.

• American Migraine Foundation: Find a DoctorUS

  Search for headache specialists, neurologists and headache centres by location.

• Migraine Research Foundation: headache centresUS

  A state-by-state list of comprehensive headache centres.

• The Migraine Trust: headache clinicsUK

  A map of NHS headache clinics, and how to get referred.

• Migraine & Headache Australia: doctor directoryAU

  Neurologists and pain specialists with a declared interest in headache.

• Sociedade Brasileira de CefaleiaBRPT

  Brazil’s headache society, with a directory of its member specialists.

Patient organisations

Reliable information, support groups, webinars and advocacy. Most are about migraine and headache in general, and welcome people with NDPH.

• American Migraine FoundationUS

  A large library of articles and videos written by headache specialists.

• National Headache FoundationUS

  Patient education about every kind of headache, including NDPH.

• CHAMP: Coalition for Headache and Migraine PatientsUS

  Patient advocacy and resources on insurance, access and support communities.

• The Migraine TrustUK

  Information, a helpline and support for work and school.

• National Migraine CentreUK

  A charity headache clinic, with clear factsheets anyone can use.

• Migraine CanadaCA

  Patient education, webinars and a page on NDPH.

• Migraine & Headache AustraliaAU

  Information, free expert seminars and a doctor directory.

• European Migraine & Headache AllianceEU

  The umbrella group for European patient organisations; find the one in your country.

• AEMICE — Asociación Española de Migraña y CefaleaES

  Spain’s patient association for migraine and headache.

• AMyCA — Asociación de Migraña y Cefalea de ArgentinaARES

  Patients, families and professionals supporting one another in Argentina.

• ABRACES — Associação Brasileira de Cefaleia em Salvas e EnxaquecaBRPT

  Brazil’s patient association for headache, founded in 2006.

Watch and listen

Talks by headache specialists you can watch or listen to on a low-light, low-energy day.

• Podcast: Understanding New Daily Persistent HeadacheENAudio

  Association of Migraine Disorders, 2022. Neurologist Matthew Robbins, MD, explains NDPH, and a patient describes his own experience, including treatments that are still experimental.

• American Migraine Foundation on YouTubeENVideo

  Short explainers and longer talks by headache specialists.

• The Migraine Trust on YouTubeENVideo

  Webinars on treatment, work, and living with headache.

• AEMICETVESVideo

  The Spanish patient association’s channel, in Spanish.

Research you can follow

• Clinical trials for NDPHEN

  ClinicalTrials.gov, filtered to NDPH. Check “Recruiting” to see studies you could join.

• Newest NDPH studies on PubMedEN

  Every published paper that mentions NDPH, newest first.

• Our review of CGRP-targeted treatment for NDPHEN

  The registered protocol (PROSPERO CRD420261493190) for a systematic review we are carrying out. Also on OSF.

For clinicians

• One-page NDPH summaryENESPT

  Criteria, secondary causes by clinical clue and management principles, referenced.

• ICHD-3 onlineEN

  The full International Classification of Headache Disorders.

• International Headache Society guidelinesEN

  Treatment and trial guidelines from the IHS.

• American Headache SocietyEN

  Consensus statements and education, including primary-care resources.

• NDPH in the pediatric and adolescent population: an updated reviewEN

  An open-access review for clinicians who see young patients.

• WHO fact sheet: headache disordersEN

  The global burden of headache, in brief.

If it feels like too much

Living with pain that doesn’t stop is exhausting, and it is common to feel low or hopeless at times. If you are thinking about harming yourself, please reach out now. These lines are free and confidential.

• US · call or text 988
• Canada · call or text 988
• UK & Ireland · Samaritans 116 123
• Australia · Lifeline 13 11 14
• Spain · 024
• Mexico · Línea de la Vida 800 911 2000
• Argentina · 135 or 0800 345 1435
• Brazil · CVV 188
• Anywhere else · findahelpline.com

In an emergency, call your local emergency number.